A diagnosis of Pseudomyxoma peritonei can be a distressing and overwhelming time, in equal measure. There is a lot of information to take in, and sometimes you just need to speak to someone who understands.
The most important thing to remember is that you are not alone! Many Pseudomyxoma peritonei patient support groups exist throughout the world, and are ready to help you with both information and support. Most of the groups are staffed by survivors of PMP and so can give you the one-to-one support and information that you need.
|Appendix Cancer Pseudomyxoma peritonei Research Foundation||https://acpmp.org/connect|
|Association contre les maladies rare de péritoine (France)||http://www.amarape.com/|
|Peritoneum Paris (Dr Marc Pocard - en Francais)||http://peritoneum-paris.fr/|
We have listed some of the more well-known PMP patient groups here, but we always have space to include more. If your patient group would like to be listed on this website, please email SciCom at europmp.eu with the web address and contact details for the person in charge at your organisation. We welcome groups from across Europe and around the world to submit their information.
The Christie (NHS Hospital Trust, UK) has kindly provided access to some of their documentation that they give to patients. If you have any questions after reading these papers, you may speak to your specialist physician who can give you the best advice for your particular situation.